Living With Grace (Part of the longer video, Grace)

[1984, 28 min.] Many educational videos portray case studies of Alzheimer’s Disease within an informational context. Living With Grace focuses on the experiences of one woman who is cared for at home by her husband, Glenn. This video is a sensitive, honest rendering of Grace’s existence as a person who is trying to cope with Alzheimer’s Disease.

Introduction

Many educational videos portray case studies of Alzheimer’s Disease within an informational context. Living With Grace focuses on the experiences of one woman who is cared for at home by her husband, Glenn. This video is a sensitive, honest rendering of Grace’s existence as a person who is trying to cope with Alzheimer’s Disease. Some of the images in the video are unforgettable. These include Grace helping prepare a meal and asking several times, “Is it supper?”; Grace singing “Jesus loves me” for one of the producers; Grace and her husband being entertained by street performers; Grace blowing bubbles at a family picnic; and Grace sitting quietly in church while the choir sings “Amazing Grace.” In effect, the director forces viewers to “live with Grace,” throughout the period of the video. She is in every scene; and the only narration is read by her husband, whose character is revealed as affirming Grace’s need for security and compassion. We are witness to a woman who is terrified by her mental deterioration. We observe her uncertainty with her environment, the constant whining in her voice, her aggressive behavior, and her relentless activity throughout the day. She almost never is still; and when we see her in quiet moments, we feel the relief that gives us an insight into the relief that is experiences by her caregiver in similar moments. Her husband admits that eventually she will require institutional care; and he also notes, “I can expect to face bankruptcy.” But the future does not appear to deter his enjoyment of the presents; he is with Grace in a remarkably loving and compassionate way. Showing those videos first would provide background on the disease and its effects on caregivers. Then showing Living With Grace would adds a significant dimension to the study of the of this devastating disease.

Pre-Viewing Notes and Activities

Summary of Scenes

  1. Grace Kirkland is seated in a living room chair at home. One of the producers, Susan Hadary Cohen, tells her, “We make documentary pictures.” Grace laughs, “Blow me down!”
  2. Grace is in the kitchen frying hamburgers. Her husband, Glenn, stands next to her. As she works we hear her husband’s voice-over summarizing symptoms of behavior that led to the diagnosis of Alzheimer’s Disease. Grace appears distraught at times. She whimpers repeatedly and often reacts fearfully to her environment. She frequently responds aggressively, but such responses are not sustained. Despite her husband’s reassurance and gentle coaxing, she continues to exhibit severe mood swings. She is confused about what meal they are preparing.
  3. Time for dessert. Grace asks, "Did we have dinner?" She becomes agitated when she sees Susan Cohen stirring a whipped topping. "That's not going to work!" She rummages about in the kitchen, finding a hand mixer. Grace turns the handle of the mixer roughly while Susan holds the bowl. We hear Glenn's voice-over: "I marvel at Grace for her ability to remain relatively calm under the circumstances. I know that if I didn't know what day it was or what time of day it was, if I didn't know where I was, it would soon drive me buggy. It must be very difficult for her." We see Grace set out the shortcakes for the strawberry shortcake. She stops, puts her hand on her hip, and says, "Is that all we're going to have? Strawberries!” Glenn coaxes her to spoon the strawberries onto the shortcakes. She marches into he kitchen, holds up the dessert, and sings, “Here comes the shortcake! They’re gonna get it! They’re gonna get it!”
  4. After dinner Grace cleans off the table. We hear Glenn’s voice-over as he admits that he will have to seek in-home care, day care, or nursing home care eventually. "I don't look forward to that at all," he says. Back to Grace in the kitchen. She rages while putting the last of the silverware away in the kitchen sink drain. "I did it! I did it! I did it!"
  5. Susan Cohen sitting next to Grace in the living room. She asks Grace what she does on Sunday. "Go to church and sing a song." Grace sings parts of two songs, changing the last verse of one. Then we see Grace working acrostics (word puzzles). She solves the puzzles easily. She turns to Susan. "I love you, Susan. Come to see me again." Susan praises her puzzle-solving ability. "I've worked these old puzzles so much," Grace says. She teases Susan, asking her to find one of the scrambled words she already knows how to unscramble. Susan says, "Grace, you are so lovable." Suddenly Grace tightens her facial features, grimacing and shaking her head from side to side. "What kind of a face is that?" Susan asks. "What about a smile for me?" Grace turns toward her and smiles sweetly. "You're nice to me. I like you, Susan. Your name is Susan, isn't it?"
  6. Grace and Glenn walking through a park. They stop to admire a cherry tree in blossom. We hear Glenn's voice-over: "Religious faith, supportive friends, becoming involved with the Alzheimer's Association, and sharing my experience with support groups--all help me."
  7. Grace and Glenn at the doctor's office, so that the doctor can conduct a follow-up interview regarding Grace's medical condition. Glenn sits between them, looking on calmly. Grace sits rigidly in her chair, her mood swinging between aggression and withdrawal. The doctor gives her three words--car, pony, and nickel--and asks her to repeat them. She does. He asks her to subtract seven from one hundred. She can not. Then he asks her to repeat the three words he noted earlier. "And I forgot all of them," she groans. "One was car, he prompts." She says, "I don't know the others." He asks her if she is worried about anything. She says belligerently, "I don't worry. I never worry." He asks, "Am I worrying you now by asking you all of these questions?" She snaps, "You can ask me anything you want to! Anything! I want to go home!"
  8. Grace and Glenn eating a snack while they watch street entertainers on the Baltimore waterfront. She enjoys a magician, who involves her husband and her in his act. Later, at a picnic table with some of their children and grandchildren, Grace appears happy and relaxed. "Oh, boy! I love dessert!" she blurts out. We see Glenn and her blowing bubbles afterwards. She laughs mightily as the bubbles surround them. "Just look at them!"
  9. Glenn driving the car to an adult day-care center. Grace is nervous and restless. One moment she cries and another moment she laughs uncontrollably. She sees a sign on a building. "Elderly! I'm elderly, too!" She laughs hysterically. Glenn tries to reassure her. Inside the center, a staff person explains their services. Grace comments on the woman's teeth and fingernails. "I don't want to be here." Grace participates in music therapy with a group of day-care clients. When they leave the day-care center, Grace runs from the camera.
  10. Later, while Grace and Glenn take a boat ride on a small canal, we hear Glenn explain that when Grace eventually is placed in a nursing home, that care will not be covered by any medical insurance plan. "I can expect to face bankruptcy."
  11. Grace seated in church. Her husband is working in a cable television control room above the sanctuary. His voice-over: "The future looks bleak. She will be bedridden and won't know who I am or be able to respond to any help." We see Grace singing along with the woman next to her. Both hold the hymnal. During a prayer, we hear Glenn's thoughts: "We'll take each day as it comes. I will continue to love her. She's been my faithful and loving wife for many years." As the prayer continues, we see Grace sitting quietly, her head bowed.
  12. The choir begins to sing, "Amazing Grace." Grace watches quietly, attentive, wiping away tears. As the singing continues, the director leaves this scene and includes about twenty images of Grace from earlier scenes in the video, showing many examples of her various mood swings, her interaction with her husband, her moments of happiness and relaxation, her moments of fearfulness and despondency. Near the end we see one image of Grace and Glenn embracing, their arms clasped. Then we return to the church service. The choir ends its song, and Grace sits quietly, looking serious and attentive. As the titles go up, we hear Grace singing, and at the very end she says, “I don’t know. I can’t remember.”

Discussion Questions and Sample Worksheet

Text of The Great Circle of Life: A Resource Guide to Films and Videos on Aging, copyright © 1987, 1999, 2005, Robert E. Yahnke. All photographs copyrighted by Robert E. Yahnke.  All rights reserved.  Contact author for permission to copy photographs or reprint portions of text.

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