SAFEGUARD FOR LIFE-ENDING DECISIONS

STATEMENTS FROM ADVOCATES
FOR DISADVANTAGED GROUPS
IF INVITED BY THE PATIENT
AND/OR THE PROXIES

  
  
    A common worry raised by opponents of the right-to-die
is that disadvantaged groups will be coerced into 'choosing' death
before it really would be wise for them.
The experience of Oregon in the USA shows no such pattern.
But if the patient and/or the proxies are worried
about the right-to-die becoming the duty-to-die for disadvantaged groups,
they can choose to have their life-ending decisions
reviewed by individuals or groups especially sensitive to their situations.

    This safeguard should be completely at the option
of the patient and/or the proxies,
since most people will not be worried about being 'railroaded' into death
because they belong to a disfavored group in society.

    The patient's advance directive for medical care
might be a good place to make a special request
for such a review of any life-ending decisions in the future.
The maker of the advance directive could take that opportunity
to suggest exactly what individual or group might be most appropriate
to review any life-ending decisions that might be made
after the patient is no longer able to make medical decisions.

    If any member of a disadvantaged group
believes that the right-to-die could never be applied rationally to his or her group,
then he or she should rule out any and all life-ending decisions
in his or her advance directive for medical care.

    A comprehensive Advance Directive for Medical Care
should address precisely this question.
Here is one formulation of the question about the right-to-die:
Question 16:  Do you endorse more active means
of ending your life?  Do you believe you have a right-to-die?
Voluntary death?  Merciful death?
The person who fears being forced to die because of group-identity
would say "no" to this Question:
For myself, I reject any so-called 'right-to-die'.

    The most radical members of disability groups
do in fact take this position.
They might say something like the following in their advance directives:
"The question of the right-to-die should never be considered for me
because of the overwhelming danger
of others choosing premature death for me because of my disability."
And such persons will choose proxies, consultants, & advocates
who will always say no to any suggestion of a chosen death.

    However, some members of disadvantaged groups
can see beyond the issue of possible discrimination
and do want to keep all of their options open,
including the option of choosing a wise voluntary death or merciful death.

    In specifying any such special advocate,
the patient will select some individual or group
that is in sympathy with their own settled values about life and death.
For example, a member of a minority group
might select a leader of that minority community
to review any life-ending decisions.
And if the patient wants to affirm the right-to-die,
this special advocate must be open to that option.
It would make no sense for the special consultant always to say "no"
just because of the generalized worry that members
of that minority group might be discriminated against.
Members of all identifiable groups
should have the same rights as everyone else.

    For patients who fear discrimination because of their mental limitations,
special consultants who are aware of bias against the mentally-challenged
could be appointed to review any life-ending decisions for such patients.

    Physically disabled patients can appoint consultants
to protect them against discrimination on the basis of disability.

    Let the patient and/or the family decide
which members of the community (if any) would be best qualified
to review any proposed life-ending decisions.
The patient and/or the family will know whom to trust with this role.

    This consultant or community leader might simply be asked to review
the death-planning record to look for any signs of discrimination.
And if there are none, this person can write a statement
supporting the decision of the patient and/or the proxies
to go ahead with a voluntary death or a merciful death.
And this fact can be made known to anyone who worries
that the patient might have been given different treatment
because he or she was part of some identifiable group.
Sometimes the news media raises such doubts
whenever someone belonging to a particular group
might be receiving sub-standard treatment because of that group-identity.
But the fact that some responsible person from the same
identity-group
has reviewed the death-planning process
especially looking for any signs of discrimination
should settle all such distant second-guessing.

    Even when a special advocate or consultant has been asked
to protect the patient from possible discrimination,
the particulars of the death-planning process should not be made public.
But in rare cases, it might be disclosed
that a special advocate who represents the same identity-group as the patient
has reviewed the death-planning process
and concluded that there are no signs of discrimination.
 
HOW STATEMENTS BY ADVOCATES FOR PARTICULAR GROUPS
WILL DISCOURAGE IRRATIONAL SUICIDE
AND OTHER FORMS OF PREMATURE DEATH

     The basic purpose of all safeguards for life-ending decisions
is to prevent foolish choices and to permit wise outcomes.
And patients who belong to particular groups should have the same protections.

    If a disabled person is tempted to commit irrational suicide,
then an advocate for disabled people should be asked to consult,
so that the disabled patient will know
that others have decided to live with that disability.
Sometimes a newly-disabled person does not want to go on living
because the disability seems so overwhelming.
But meeting others who have learned to cope with that disability
can give the patient a different perspective on life.

    Whatever identity-groups the patient belongs to,
there will be other members of those groups
who know what a premature death would look like.
And when asked to evaluate the situation,
members of those group might bring some special perspectives
that would not be present in the discussion
if only main-stream persons were involved. 
If the special advocates see their role as preventing premature death,
they should be able to raise doubts where such doubts are valid.
And they should be able to affirm the life-ending decision
when that is the wisest course of action given all the circumstances.


Created January 2007; revised 2-13-2007; 2-21-2008; 3-21-2008; 6-24-2008



Go to the Catalog of Safeguards for Life-Ending Decisions



Go to the list of 26 recommended safeguards.



Go to the index page for the Safeguards Website.



Go to the Right-to-Die Portal.



Go to the opening page for this website:
An Existential Philosopher's Museum













The views and opinions expressed in this page are strictly those of the page author.
The contents of this page have not been reviewed or approved by the University of Minnesota.